Coming up on Wednesday, Emma will visit the doctors at Shriner's in order to figure out a treatment plan for her arthritis. We keep hearing how incredible they are, and we are certainly hoping that is the case. If that were the only reason for her and Amy's jaunt to Dallas, then that would be all well and good. Unfortunately it's not.
Well over a year ago, Emma was diagnosed with Juvenile Rheumatoid Arthritis and put on a treatment plan that included methotrexate (an anti-cancer drug) and Celebrex. Almost immediately, Emma stopped limping down the hall in the morning and it appeared that the treatment was working. And then Amy decided we might ought to test her urine. You would think one of her 5 specialists would have thought of that, but as always, Amy was Emma's advocate. And the results of her tests were not good. She had large amounts of blood and protein in her urine. And so it's gone on for a year.
We tried stopping the Celebrex and the methotrexate, and the only benefit is that Emma seems to be much happier and even feel better. But she's not better. And that's not good. So on Thursday morning a doctor will take a biopsy of her kidney, and hopefully it will give us an answer. The problem is that there really is no good choice. As I understand it, here are our options: the blood and protein are caused by the Celebrex or methotrexate, or it's caused by Lupus.
Lupus. It's hard to even say, isn't it? It's pretty sad when our best option is that a drug used to treat her arthritis is causing her kidneys to fail. Or maybe it's not arthritis at all. Lupus is often missed but presents with swelling that mimics arthritis and...you guessed it...kidney problems.
I'll let you all know something as soon as I do.